The National Cardiovascular Data Registry Data Quality Program 2020: JACC State-of-the-Art Review

David J Malenka; Deepak L Bhatt; Steven M Bradley; David M Shahian; Jasmine Draoui; Claire A Segawa; Christina Koutras; Jinnette D Abbott; James C Blankenship; Robert Vincent; John Windle; Thomas T Tsai; Jeptha Curtis; Matthew Roe; Frederick A Masoudi

doi:10.1016/j.jacc.2022.02.034

The National Cardiovascular Data Registry Data Quality Program 2020: JACC State-of-the-Art Review

J Am Coll Cardiol. 2022 May 3;79(17):1704-1712. doi: 10.1016/j.jacc.2022.02.034.

Authors

Affiliations

¹ Cardiovascular Medicine, Dartmouth-Hitchcock Medical Center, Lebanon, New Hampshire, USA. Electronic address: david.j.malenka@hitchcock.org.
² Brigham and Women's Hospital, Boston, Massachusetts, USA; Harvard Medical School, Boston, Massachusetts, USA.
³ Minneapolis Heart Institute and Minneapolis Heart Institute Foundation, Minneapolis, Minnesota, USA.
⁴ Harvard Medical School, Boston, Massachusetts, USA; Division of Cardiac Surgery, Department of Surgery, and Center for Quality and Safety, Massachusetts General Hospital, Boston, Massachusetts, USA.
⁵ American College of Cardiology, Washington DC, USA.
⁶ Lifespan Cardiovascular Institute, Rhode Island Hospital, Providence, Rhode Island, USA; Warren Alpert Medical School at Brown University, Providence, Rhode Island, USA.
⁷ Division of Cardiology, University of New Mexico, Albuquerque, New Mexico, USA.
⁸ Division of Pediatric Cardiology, Westchester Medical Center and New York Medical College, Valhalla, New York, USA.
⁹ University of Nebraska Medical Center, Omaha, Nebraska, USA.
¹⁰ Interventional Cardiology and Institute for Health Research, Kaiser Permanente Colorado, Denver, Colorado, USA; University of Colorado, Denver, Denver, Colorado, USA.
¹¹ Section of Cardiovascular Medicine, Department of Internal Medicine, Yale School of Medicine, New Haven, Connecticut, USA.
¹² Verana Health, San Francisco, California, USA; Duke University Medical Center, Duke Clinical Research Institute, Durham, North Carolina, USA.
¹³ Research and Analytics, Ascension Health, St Louis Missouri, USA.

PMID: 35483759
DOI: 10.1016/j.jacc.2022.02.034

Abstract

The National Cardiovascular Data Registry is a group of registries maintained by the American College of Cardiology Foundation. These registries are used by a diverse constituency to improve the quality and outcomes of cardiovascular care, to assess the safety and effectiveness of new therapies, and for research. To achieve these goals, registry data must be complete and reliable. In this article, we review the process of National Cardiovascular Data Registry data collection, assess data completeness and integrity, and report on the current state of the data. Registry data are complete. Accuracy is very good but variable, and there is room for improvement. Knowledge of the quality of data is essential to ensuring its appropriate use.

Keywords: American College of Cardiology; NCDR; audit; data quality program; quality; registry.

Publication types

Review
Research Support, Non-U.S. Gov't

MeSH terms

Cardiology*
Data Accuracy*
Humans
Registries
United States / epidemiology